Open event menu
1st TIF PAN-AMERICAN CONFERENCE ON THALASSAEMIA AND OTHER HAEMOGLOBIN DISORDERS & 2nd RAIN SUMMIT
The Thalassaemia International Federation successfully held the 1st TIF Pan American Conference on Thalassaemia & Other Haemoglobin Disorders and the 2nd RAIN Summit, 11–13 July 2025, at the Hyatt Regency Crystal City, Washington D.C., USA.
2025 Jul 11 - 13
Key Highlights
Advances in Thalassaemia and Sickle Cell Disease Management: The latest developments, new treatment protocols and patient care strategies.
Gene and Cell-Based Therapies: Future prospects and their potential to revolutionise the treatment of haemoglobin disorders.
Multidisciplinary Care Models: Effective models integrating healthcare disciplines for comprehensive haemoglobinopathy care.
Health Equity & Unmet Needs: Strategies to address disparities and ensure equitable access to care for all patients.
RAIN Summit: Regional collaboration for sustainable change in rare anaemias.
19 CME Hours: Accredited by the American Association of Continuing Medical Education® (AACME).
Capacity Building for Patients: Empowering patients and patient organisations to advocate for better healthcare and support.
Regional & Global Policy: Policy initiatives to improve access to care across the Americas and worldwide.
About the Event
The Thalassaemia International Federation (TIF) organised the 1st TIF Pan American Conference on Thalassaemia & Other Haemoglobin Disorders and the 2nd RAIN Summit, held from 11 to 13 July 2025 at the Hyatt Regency Crystal City, Washington D.C., USA, in collaboration with the Cooley’s Anemia Foundation (CAF) and with the support of TIF’s Pan American Network for Haemoglobin Disorders (PANHD).
The conference brought together healthcare professionals, researchers, policymakers, caregivers and patient advocates from across the Americas through two parallel programmes: a Scientific Programme on multidisciplinary care, new therapies and emerging challenges, and a Patient and Parent Programme on managing haemoglobin disorders, advocacy and access to care. It concluded with the 2nd RAIN Summit on rare anaemias.
Accredited by the AACME for a maximum of 19 Category I credits. For more information, contact tif2025@thalassaemia.org.cy.
Expected attendees
Healthcare professionals, researchers, policymakers, caregivers and patient advocates from across the Americas, including the PANHD countries (Argentina, Brazil, Canada, Trinidad & Tobago and the USA).Key themes
Advances in thalassaemia and sickle cell disease management, gene and cell-based therapies, multidisciplinary care models, health equity and unmet needs, patient capacity building, regional and global policy for access to care, and rare anaemias (RAIN Summit).Who should attend
Patients and patient/parent organisations, healthcare professionals and medical specialists, academics, researchers and scientists, policymakers and health authorities, and industry representatives.
Program Outline
View Full Agenda11 Jul
15:00 - 15:30Opening Ceremony and Welcome Addresses
Joint Programme. Introduction by Mr Robert Ficarra and Prof. Dimitrios Farmakis. Welcome addresses by the President of TIF, Dr Panos Englezos; the National President of Cooley’s Anemia Foundation, Mr Ralph Colasanti; and the Former President of the American Society of Hematology (ASH), Dr Narla Mohandas. Awards Ceremony.
Read More11 Jul
15:30 - 17:00Session 1. Keynote Session
Joint Programme. Chairpersons: Bessie Calabria & Ralph Colasanti.
Read More11 Jul
15:30 - 15:4011 Jul
15:40 - 15:55The Contribution of Haemoglobin Disorders to the Regional Disease Burden – TIF’s Perspective
Session 1. Keynote Session
Read More11 Jul
15:55 - 16:20Bridging Gaps and Addressing Challenges in the Care of Haemoglobin Disorders: Past – Present – Future
Session 1. Keynote Session
Read More11 Jul
16:20 - 16:50Patient Voices – Personal Journeys Across the Americas: My Truth, My Story
Testimonials from the USA, Canada, Brazil, Argentina and Trinidad & Tobago: Rob Mannino (USA), Bessie Calabria (Canada), Isabely Di Roberto (Brazil), Lucio M. Bongiorno (Argentina), Jason Brathwaite (Trinidad & Tobago).
Read More11 Jul
16:50 - 16:56A Unique Journey of Love: Embracing the Rewards and Challenges of Adopting Children with Thalassaemia
Presented by Michelle Campbell.
Read More11 Jul
16:56 - 17:00The Work and Contribution of TIF (Video)
Read MoreVenue Highlight
Our Sponsors
We gratefully acknowledge our sponsors who power the TIF Education Education platform.
Platinum Sponsors
Gold Sponsors
Silver Sponsors
Meet the Organizers
The people driving the vision, planning, and execution of this conference.
Thalassaemia International Federation (TIF)
Organiser
Cooley’s Anemia Foundation (CAF)
In Collaboration With
Pan American Network for Haemoglobin Disorders (PANHD)
Supported ByFrequently Asked Questions
The conference takes place from 11 to 13 July 2025 at the Hyatt Regency Crystal City, 2799 Richmond Highway, Arlington, VA 22202, Washington D.C., USA.
The Thalassaemia International Federation (TIF), in collaboration with the Cooley’s Anemia Foundation (CAF) and supported by the Members of TIF’s Pan American Network for Haemoglobin Disorders (PANHD).
Two parallel programmes run during the conference: a Scientific Programme for healthcare professionals and a Patient and Parent Programme. They are followed by the 2nd RAIN (Rare Anaemias International Network) Summit on 13 July.
Complete the registration form. The secretariat will then email you a proforma invoice and bank transfer details for payment to a U.S. bank account, if space is available. Once payment is confirmed, you will receive detailed registration information by email.
Patient/Parent: $460 · Healthcare Professional: $530 · Exhibitor: $650 · Industry Representative: $850. Fees include access to conference areas based on category, conference materials and the meals and coffee breaks listed in the programme.
Cancellations within the first 24 hours receive a full refund. Cancellations before 31 May 2025 incur 50% charges, and from 1 June 2025 onwards 100% charges. Cancellations due to US visa rejection are fully refunded up to 20 June 2025.
Yes. A delegate rate of $162 plus taxes (currently 14.5%) is available at the Hyatt Regency Crystal City for single and double rooms, for stays from 9 to 15 July 2025, on a first come, first served basis.
Yes. The Accreditation Review Committee of the American Association of Continuing Medical Education® designates this educational activity for a maximum of 19 category I credits.
Yes. Abstracts (poster/oral) and case presentations could be submitted to tif2025@thalassaemia.org.cy by 5 May 2025. Presenters must register and pay by 30 May 2025 to be included in the programme.
Please email the conference secretariat at tif2025@thalassaemia.org.cy.
Shaping the Future of Haemoglobin Disorder Care Across the Americas
Join patients, clinicians, researchers and policymakers in Washington D.C. for the 1st TIF Pan American Conference and the 2nd RAIN Summit.
Register Now